well as some of you may already know this April fool's day is a big day for me, i am having my operation!!! thats right im finally getting "Alan" fitted, and this "Alan" is in fact a tube for me to do dialysis through, he is going to live in my peritonium?!?! (spelling) basically in and around my tummy area..... and hopefully this little device will mean that i can have a little bit more to drink than the measly 1litre that im on at the moment, and i hate that!!!
Well time for a weight update, slightly strange thing to say but i have been losing weight rather a lot recently due to me being slightly better with the fluid allowance, im now down to around 88kg, target weight is 87!!! when i went in to hospital i think i was roughly 100kg, that means i must have been carrying around 12kg extra weight in fluid....... and that is a lot!!!!
Well must dash
The One in a Million Man x
Cake!!!
well they do make exceedingly good cakes
Wednesday, March 30, 2011
Friday, March 25, 2011
exit and re-entry!!
well sorry its been such a while been pretty busy!!!!
well i can safely say that i am out again, i left the first time on the monday after i went in, so only a short stay!!! but that was a pain in its self, i missed uncle roddy's funeral so i was fairly pissed off about that.... well lets see whats been going on, the cough is now clearing up and the blood is few and far between and is now nice and dark!!! haha. so that was that eventful weekend, i do feel sorry for everyone i kinda cocked things up a bit as the funeral was sort of arranged around me being able to go!!! oooops, well like i say i dont go into hospital for normal things, i like to do it in style!!!!
Right fast forward a few days St Patrick's day!!! great guiness yum, so i think to myself right lets save my allowance and have a pint of the black stuff and thats what i did, and fuck me was it good........ little did i know that two days later this heavenly pint of the black stuff would cause me to have a potassium spike and put me back into hospital overnight!!!! sorry jess... we ended up in an ambulance at 4am going from eastbourne to brighton because of a single fucking pint!!!! not bad ehh! like i say i do it with style, the worst thing is poor jess had to sleep on a hospital chair oh and amusingly thats the longest she's ever spent in hospital, and she wasnt even being treated!!!!!
muchos love
The One in a Million Man
well i can safely say that i am out again, i left the first time on the monday after i went in, so only a short stay!!! but that was a pain in its self, i missed uncle roddy's funeral so i was fairly pissed off about that.... well lets see whats been going on, the cough is now clearing up and the blood is few and far between and is now nice and dark!!! haha. so that was that eventful weekend, i do feel sorry for everyone i kinda cocked things up a bit as the funeral was sort of arranged around me being able to go!!! oooops, well like i say i dont go into hospital for normal things, i like to do it in style!!!!
Right fast forward a few days St Patrick's day!!! great guiness yum, so i think to myself right lets save my allowance and have a pint of the black stuff and thats what i did, and fuck me was it good........ little did i know that two days later this heavenly pint of the black stuff would cause me to have a potassium spike and put me back into hospital overnight!!!! sorry jess... we ended up in an ambulance at 4am going from eastbourne to brighton because of a single fucking pint!!!! not bad ehh! like i say i do it with style, the worst thing is poor jess had to sleep on a hospital chair oh and amusingly thats the longest she's ever spent in hospital, and she wasnt even being treated!!!!!
muchos love
The One in a Million Man
Saturday, March 12, 2011
Re-Admittance....... Shit
well hello to all...
to those how dont know i have managed to get myself re-admitted into the hospital, and its mainly my fault.....
i decided to overload myself with fluid and possibly pick up a chest infection which in turn has led to a Pulmonary Haemorrhage, marvellous lol... well you see i do have to do things in style its seems like i cant just go into hospital like a normal person i either have to be d.o.a (nearly) or coughing up copious amounts of blood.
well lets start at the beginning, March... 11th i wake up at 2.30am coughing, hard. i toss and i turn but then i felt the blood rise in my throat, i had to cough it up, i did and fucking hell its like strawberry jam, im thinking to myself "uh oh thats not good, thats either a haemorrhage or an edema," neither are particularly nice. after a few hours i thought to myself i cant sleep at all so i got mum, (3.30am) by 6.30am i had decided to admit myself to hospital, and boy what a day to do it on, i managed to miss Uncle Roddy's funeral, (Rest In Peace) and also the horrific earthquake and tsunami in Japan. well im tired as its still before 7am!!! on a damned sunday and im already awake and writting to you all.
how is everyone doing on the challenge and finally anyone without a google account can again contact me on email, its madmanpete@yahoo.co.uk
Much Love to all
The One in a Million Man
to those how dont know i have managed to get myself re-admitted into the hospital, and its mainly my fault.....
i decided to overload myself with fluid and possibly pick up a chest infection which in turn has led to a Pulmonary Haemorrhage, marvellous lol... well you see i do have to do things in style its seems like i cant just go into hospital like a normal person i either have to be d.o.a (nearly) or coughing up copious amounts of blood.
well lets start at the beginning, March... 11th i wake up at 2.30am coughing, hard. i toss and i turn but then i felt the blood rise in my throat, i had to cough it up, i did and fucking hell its like strawberry jam, im thinking to myself "uh oh thats not good, thats either a haemorrhage or an edema," neither are particularly nice. after a few hours i thought to myself i cant sleep at all so i got mum, (3.30am) by 6.30am i had decided to admit myself to hospital, and boy what a day to do it on, i managed to miss Uncle Roddy's funeral, (Rest In Peace) and also the horrific earthquake and tsunami in Japan. well im tired as its still before 7am!!! on a damned sunday and im already awake and writting to you all.
how is everyone doing on the challenge and finally anyone without a google account can again contact me on email, its madmanpete@yahoo.co.uk
Much Love to all
The One in a Million Man
Tuesday, March 8, 2011
Pancake day Dialysis!!
Good day to those who are following!!!! Happy shrove tuesday :).
well back in hospital again!!! but this time not quite so overloaded!! only 4l i think, but we're getting it down slowly. Unfortunately i have found out one annoying thing, the more overloaded i am the more blood i cough, and that is pretty harsh!! so i gotta work hard on the fluid allowance,
Oh yeah with the allowance challenge im being generous on you guys, as i don't even get the luxury of a litre i have to make do with 750ml, according to mum "thats 3 cups of tea" and it roughly is, cup size obviously plays a part.
well once we're done today i think i might attempt to make some pancakes, english and american style! i love pancakes, and then after that i think a nap is in order.
Nice to see more people are following, keep it up
and remember the challenge encompasses all fluid - thats food aswell!!!!
The One in a Million Man
well back in hospital again!!! but this time not quite so overloaded!! only 4l i think, but we're getting it down slowly. Unfortunately i have found out one annoying thing, the more overloaded i am the more blood i cough, and that is pretty harsh!! so i gotta work hard on the fluid allowance,
Oh yeah with the allowance challenge im being generous on you guys, as i don't even get the luxury of a litre i have to make do with 750ml, according to mum "thats 3 cups of tea" and it roughly is, cup size obviously plays a part.
well once we're done today i think i might attempt to make some pancakes, english and american style! i love pancakes, and then after that i think a nap is in order.
Nice to see more people are following, keep it up
and remember the challenge encompasses all fluid - thats food aswell!!!!
The One in a Million Man
Saturday, March 5, 2011
The Fluid Allowance Challenge :)
right hello lovely people!!!!!
I would like to lay down a challenge, to all those who think they can do it i invite you to try and survive anything from 24hrs to the full 7days on exactly the same amount of fluid as i am allowed to have in a day........
The amount is upto 1Litre...
Rules.
it encompase all fluids....
that includes fluid in food i.e. gravy, ice cream, jelly etc....
other than that enjoy the pain.......
It is fucking hard but the person who can stay with me the longest in this challenge will win a paid night out with me once i have had my transplant or am in a state where i can enjoy an evening out to an acceptable level........
On a lighter note i found out this morning that the machine wanted to take over 6L of fluid off me, no wonder i've been feeling a bit dodgy, thats a lot for all those who dont know!!!!!
Oh yeah on thursday i was told that i can get the tattoo i've been planning to remember this illness by done whilst on dialysis, GOOD TIMES :) sorry mum and dad haha..........
The One in a Million Man
I would like to lay down a challenge, to all those who think they can do it i invite you to try and survive anything from 24hrs to the full 7days on exactly the same amount of fluid as i am allowed to have in a day........
The amount is upto 1Litre...
Rules.
it encompase all fluids....
that includes fluid in food i.e. gravy, ice cream, jelly etc....
other than that enjoy the pain.......
It is fucking hard but the person who can stay with me the longest in this challenge will win a paid night out with me once i have had my transplant or am in a state where i can enjoy an evening out to an acceptable level........
On a lighter note i found out this morning that the machine wanted to take over 6L of fluid off me, no wonder i've been feeling a bit dodgy, thats a lot for all those who dont know!!!!!
Oh yeah on thursday i was told that i can get the tattoo i've been planning to remember this illness by done whilst on dialysis, GOOD TIMES :) sorry mum and dad haha..........
The One in a Million Man
Wednesday, March 2, 2011
Pill Time!!! The pills I take daily
Cyclophosamide - For GBM
Prednisolone - Steriod - To suppress immune system
Lansoprazole - protects stomach
Nystatin - Prevents fungal infection
Alendronic Acid - For Bones
Calichew - Phosphate binder
Doxazosin - blood pressure
Metoprolol - blood pressure
Co-Trimaxazole - prevents infection
Alfacalcidol - Vitamin D supplement
Folic acid - Vitamin supplement
Ketovite - Vitamin supplement
That is all the pills i take every day!!!!
The One in a Million Man
Prednisolone - Steriod - To suppress immune system
Lansoprazole - protects stomach
Nystatin - Prevents fungal infection
Alendronic Acid - For Bones
Calichew - Phosphate binder
Doxazosin - blood pressure
Metoprolol - blood pressure
Co-Trimaxazole - prevents infection
Alfacalcidol - Vitamin D supplement
Folic acid - Vitamin supplement
Ketovite - Vitamin supplement
That is all the pills i take every day!!!!
The One in a Million Man
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