well its now the end of Feb!!! and i have been released from hospital, well a couple of days ago anyways. Its been pretty good to be out except the fact that i have to be back every other day for dialysis!!! grrrr. I want my PD cath fitted as quick as possible.
Well like i was talking about the other day jess and i attempted the roast dinner............ GREAT SUCCESS!!!! I like very much :) it went down a storm and jess made special oil, garlic, lemon, and other secret ingredients. Jess' parents came round and we gorged on chicken and tatties and veg. so all in all a damn good sunday, apart from the fact that by the end of the day i was absolutely exhausted!!! and still am fairly tired now..
Well its the beginning of the first full week out of the hospital and im hoping to get as much done as possible, i got at least three things to do!!! This is gonna be a tough year but lets crack on with it.
by the way this is the first post from home, its so good to be home, i cannot believe i spent 27days in hospital.
The One in a Million Man
Cake!!!
well they do make exceedingly good cakes
Monday, February 28, 2011
Saturday, February 26, 2011
Re-entry(2)...........Bollocks.... not too bad
sorry its a bit later than normal the update, i found out today that a fair few people are interesed in this awful tat that im putting on the internet.....
special message for John (syfret) Hows the weather with you and i hope no-ones trying to topple your government/king/dictator... delete as applicable :)...
well back to the situation i've got 55mins left hooked up then its off home, a lots happened this week, we've had break outs and re-entry's and one escape but its looking up for me, i should within the next month (hopefully) have my PD catheter fitted and then i can dialyse at home!!!! im thinking maybe a little gathering is in order as jess and i never had a house-warming..... which is not a good thing as it means technically the house is still cold..... even though the heating does work, well once i can figure it out.... oooops going off the subject again!!!
Exciting times tomorrow has Jess and i are going to attempt the Sunday Roast, and we're going straight in at the deep end, her parents are coming round!!! Shit, better not under cook the tatties, or get the seasoning wrong, but the thing is we're both proper excited about doing it, well whatever happens its gonna be a great day.
ps. those who dont have a google account can email me on madmanpete@yahoo.co.uk
The One in a Million Man
special message for John (syfret) Hows the weather with you and i hope no-ones trying to topple your government/king/dictator... delete as applicable :)...
well back to the situation i've got 55mins left hooked up then its off home, a lots happened this week, we've had break outs and re-entry's and one escape but its looking up for me, i should within the next month (hopefully) have my PD catheter fitted and then i can dialyse at home!!!! im thinking maybe a little gathering is in order as jess and i never had a house-warming..... which is not a good thing as it means technically the house is still cold..... even though the heating does work, well once i can figure it out.... oooops going off the subject again!!!
Exciting times tomorrow has Jess and i are going to attempt the Sunday Roast, and we're going straight in at the deep end, her parents are coming round!!! Shit, better not under cook the tatties, or get the seasoning wrong, but the thing is we're both proper excited about doing it, well whatever happens its gonna be a great day.
ps. those who dont have a google account can email me on madmanpete@yahoo.co.uk
The One in a Million Man
Friday, February 25, 2011
Re-entry(1)...........Bollocks
well its 09.21 friday morning and guess where i am.... back in the damn hospital but its ok, im only in for my thrice weekly dialysis sessions, well i say thrice this week im being done four times!! and i only got 3hrs7mins left today, dunno how long im gonna be on for tomorrow. Well like i say it could be worse, the doctors told me the other day that the levels that i came in with well.......... i was very much more alive than i should have been, haha!!!
The flat is incredible and pretty much finished to an acceptable standard, and Jess has done a great job..... On a lighter note, if you know anyone Blood type O negative and with a spare Kidney, i would appreciate if i could have it!!!!!! Unfortunatley mum and dad are the wrong blood type A+ for those who want to know, and that is also rather amusing as both went to Cambridge so must have got a few A+'s along the way, lol.
Anyways Jimi Hendrix calls so i will love and leave all
Peace, Love and Chocolate Eggs!
The One in a Million Man
x
The flat is incredible and pretty much finished to an acceptable standard, and Jess has done a great job..... On a lighter note, if you know anyone Blood type O negative and with a spare Kidney, i would appreciate if i could have it!!!!!! Unfortunatley mum and dad are the wrong blood type A+ for those who want to know, and that is also rather amusing as both went to Cambridge so must have got a few A+'s along the way, lol.
Anyways Jimi Hendrix calls so i will love and leave all
Peace, Love and Chocolate Eggs!
The One in a Million Man
x
Wednesday, February 23, 2011
where to begin!!!!
well hello to all those who are reading this constant drivel!!!!
it is now the 23/02/11 and i have been in hospital one day shy of 4weeks, and guess what they finally say that i can leave this place..... WHOOP WHOOP!!! i get to be in the flat with the Bubba (thats jess) and of course no longer under 24/7 scrutiny, and no more fucking blood tests.... "morning, can i have some of your blood please!!" that is no way to be woken up, in fact its quite unsettling and can raise blood pressure haha.
i have had a few problems with blood pressure, its been up and down like a yo-yo!!! These doctors are meant to help you, they were giving a tablet that was causing my liver to function abnormally, for those who are interested please dont give me AMLODIPINE as i am allergic to it amusingly.....
well today is going well, already on dialysis and should be home later on tonight...... smashing the beatles just came on the laptop (Fixing a Hole. TUNE) well i do enjoy the classics.
Peace, love and Frazzles
The One in a Million Man
it is now the 23/02/11 and i have been in hospital one day shy of 4weeks, and guess what they finally say that i can leave this place..... WHOOP WHOOP!!! i get to be in the flat with the Bubba (thats jess) and of course no longer under 24/7 scrutiny, and no more fucking blood tests.... "morning, can i have some of your blood please!!" that is no way to be woken up, in fact its quite unsettling and can raise blood pressure haha.
i have had a few problems with blood pressure, its been up and down like a yo-yo!!! These doctors are meant to help you, they were giving a tablet that was causing my liver to function abnormally, for those who are interested please dont give me AMLODIPINE as i am allergic to it amusingly.....
well today is going well, already on dialysis and should be home later on tonight...... smashing the beatles just came on the laptop (Fixing a Hole. TUNE) well i do enjoy the classics.
Peace, love and Frazzles
The One in a Million Man
Friday, February 18, 2011
Break Outs2 and 3
well the 17th feburary turned into a bit of an escape from hospital!!!!!
the morning breakout took place at about 11.30 after much deliberation and calcium (low calcium levels meant had to have 4 huge tablets) then down to the pier for a battered sausage and 5 donuts :) yummy. Then it was a random drive to hove........ i had to then return to the hospital as i did have one round of treatments, just the usual plasma exchange. God it took ages yesterday i reacted badly to the plasma found out that it takes out calcium, and that my levels had dropped really quite low, infact on tuesday when out for valentines day lunch with jess i had the urge for a milkshake (i dont normally like them). it must have been my body telling me it needed calcium. The exchange took forever but once it was done it was time for breakout 3........
Breakout 3...
City Of Ashes with Jess
Like i said it was a day of breakouts...
Once the exchange had finished it was time for the ultimate breakout, off to the hydrant London Road for COA's final leg of their headline tour. well on the way there it was decided that a dinner stop was in order.... KFC time yum.... Crispy straps and Popcorn chicken for me and Jess the Kentucky Jack (should be renamed the KenMucky Jack, it goes all over the place) after that on to the Hydrant. The first thing that greeted us was Mike then four flights of stairs!!!! Fuck i thought but it wasnt too bad Jess helped me up. The gig itself was awesome and the band straight away made sure i was ok got me a chair and were just so happy to see me, right now on to the fluid for the evening.... a pint of ice cubes and then a bottle of ginger ale (a 125ml bottle, and shared between 3) thats it, yet the gig turned into an amazing night, until the hospital cock up (no-one had told the night staff that i was breaking out).
Finally on a better note DR Speedy (not real name) has told me that im allowed home for the weekend, yay i get to snuggle Jess on the weekend and maybe even stay in the flat.... actually definately stay in the flat. Well gotta go, dialysis time 4hours great.
The One in a Million Man
the morning breakout took place at about 11.30 after much deliberation and calcium (low calcium levels meant had to have 4 huge tablets) then down to the pier for a battered sausage and 5 donuts :) yummy. Then it was a random drive to hove........ i had to then return to the hospital as i did have one round of treatments, just the usual plasma exchange. God it took ages yesterday i reacted badly to the plasma found out that it takes out calcium, and that my levels had dropped really quite low, infact on tuesday when out for valentines day lunch with jess i had the urge for a milkshake (i dont normally like them). it must have been my body telling me it needed calcium. The exchange took forever but once it was done it was time for breakout 3........
Breakout 3...
City Of Ashes with Jess
Like i said it was a day of breakouts...
Once the exchange had finished it was time for the ultimate breakout, off to the hydrant London Road for COA's final leg of their headline tour. well on the way there it was decided that a dinner stop was in order.... KFC time yum.... Crispy straps and Popcorn chicken for me and Jess the Kentucky Jack (should be renamed the KenMucky Jack, it goes all over the place) after that on to the Hydrant. The first thing that greeted us was Mike then four flights of stairs!!!! Fuck i thought but it wasnt too bad Jess helped me up. The gig itself was awesome and the band straight away made sure i was ok got me a chair and were just so happy to see me, right now on to the fluid for the evening.... a pint of ice cubes and then a bottle of ginger ale (a 125ml bottle, and shared between 3) thats it, yet the gig turned into an amazing night, until the hospital cock up (no-one had told the night staff that i was breaking out).
Finally on a better note DR Speedy (not real name) has told me that im allowed home for the weekend, yay i get to snuggle Jess on the weekend and maybe even stay in the flat.... actually definately stay in the flat. Well gotta go, dialysis time 4hours great.
The One in a Million Man
Wednesday, February 16, 2011
The One Hundred Club
well Morning all who are interested in the blog.....
I believe that today at 7.58am i joined an exclusive club......... i am currently waiting for my telegram from the Queen as i reached 100......... Not years but stabs.... I believe i have had around 100 blood samples taken, the 3 to take me to 100 were taking this morning.
Flowers and cards to the usual adress, and er no well wishers as it is a fairly exclusive club!!!!!!!!!!
The One In a Million Man
I believe that today at 7.58am i joined an exclusive club......... i am currently waiting for my telegram from the Queen as i reached 100......... Not years but stabs.... I believe i have had around 100 blood samples taken, the 3 to take me to 100 were taking this morning.
Flowers and cards to the usual adress, and er no well wishers as it is a fairly exclusive club!!!!!!!!!!
The One In a Million Man
Tuesday, February 15, 2011
Break Out!!!!!
15th feb..............
is breaking out for the afternoon, shhhhhhhh dont tell the doctors, i might even be able to get a spot of lunch in, and some fresh air, i dont like being cooped inside like a chicken. Oh yeah steve shaved his beard off...... he looks twenty years younger no joke!!!!!!!
well only 44mins to go on the plasma then im busting out.
lets do lunch Jess!!!!
The One In a Million Man
is breaking out for the afternoon, shhhhhhhh dont tell the doctors, i might even be able to get a spot of lunch in, and some fresh air, i dont like being cooped inside like a chicken. Oh yeah steve shaved his beard off...... he looks twenty years younger no joke!!!!!!!
well only 44mins to go on the plasma then im busting out.
lets do lunch Jess!!!!
The One In a Million Man
Sunday, February 13, 2011
its been a while!!! lets go right back
these are some of the notes that have taken since i've been in here....
1st day of treatment we came up with...
tough, pills, sick and Oxygen.
that was the first monday i was in here, boy that day was hard they give a me tablet that they knew would make me sick but they didnt tell me that i had to sit up for half an hour otherwise i would be sick, so i took it lay down and within about 5mins was throwing up like a good un!!!!
Also on this first monday i started my first round of treatments which im still on now, they where Plasma exchange and dialysis. The most amazing thing is that my breathing got bad so i spent most of the day having an oxygen mask to help me breathe, that must have been fucking scary for anyone visiting me that, i didnt like it at all but damn was i struggling for breath without it..... in the end i had to sleep with a mask on..... i did sleep well that night but it wasnt the most comfortable nights sleep, you try sleeping with a mask on.....
last few notes i took down on this first day....
I've turned dad's hair more grey...... he now has become the silver fox.
and finally .......
but other than that an alright day, NOT!
The One In A Million Man
1st day of treatment we came up with...
tough, pills, sick and Oxygen.
that was the first monday i was in here, boy that day was hard they give a me tablet that they knew would make me sick but they didnt tell me that i had to sit up for half an hour otherwise i would be sick, so i took it lay down and within about 5mins was throwing up like a good un!!!!
Also on this first monday i started my first round of treatments which im still on now, they where Plasma exchange and dialysis. The most amazing thing is that my breathing got bad so i spent most of the day having an oxygen mask to help me breathe, that must have been fucking scary for anyone visiting me that, i didnt like it at all but damn was i struggling for breath without it..... in the end i had to sleep with a mask on..... i did sleep well that night but it wasnt the most comfortable nights sleep, you try sleeping with a mask on.....
last few notes i took down on this first day....
I've turned dad's hair more grey...... he now has become the silver fox.
and finally .......
but other than that an alright day, NOT!
The One In A Million Man
Sunday, February 6, 2011
Amusing Prognosis from the doc
after so long in here i thought it would be funny to see how far a doctor could go with the side effects before they got ridiculous......
1. your nose grows to 4 times the size of your face.
2. Your ear hair grows so long that it gets caught in barbed wire fencing.
3. you develop the reflexes of a frog and can catch flies with your tongue.
4. your legs may turn into sausages, but its ok as they are veggie ones that no one likes..... not even ree.
anymore amusing suggestions?????
The one in A Million Man
1. your nose grows to 4 times the size of your face.
2. Your ear hair grows so long that it gets caught in barbed wire fencing.
3. you develop the reflexes of a frog and can catch flies with your tongue.
4. your legs may turn into sausages, but its ok as they are veggie ones that no one likes..... not even ree.
anymore amusing suggestions?????
The one in A Million Man
The one in a million man
well here we go at last.........
day 9 i think..
have been stuck in a hospital in deepest darkest brighton, good be worst but not much as i havent been outside since the 27th jan.
in the past month i have managed to contract a highly rare (1 in a Million) illness called Anti GBM disease also know as, Good Pastures Syndrome. That name proper pisses me off as it sounds like a lovely thing to do with a farm which could be appropriate, when it fact its where my own body's immune system is trying eat the lining of my lungs (which looks to have stopped now) and has also caused my kidneys to fail (havent really had a pee in about 9days now!).
sooooo that is really the start of things so far.................
day 9 i think..
have been stuck in a hospital in deepest darkest brighton, good be worst but not much as i havent been outside since the 27th jan.
in the past month i have managed to contract a highly rare (1 in a Million) illness called Anti GBM disease also know as, Good Pastures Syndrome. That name proper pisses me off as it sounds like a lovely thing to do with a farm which could be appropriate, when it fact its where my own body's immune system is trying eat the lining of my lungs (which looks to have stopped now) and has also caused my kidneys to fail (havent really had a pee in about 9days now!).
sooooo that is really the start of things so far.................
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